@inproceedings{inproceedings, title  = {{CURRENT METHODS OF ASSESSING HEALTH-RELATED QUALITY OF LIFE (HRQoL) IN INFORMAL CARERS OF CHILDREN WITH RARE PROGRESSIVE LIFE-LIMITING CONDITIONS ARE INADEQUATE: FINDINGS FROM A COLLABORATIVE PROJECT HERCULES WORKSHOP}},

 url = {{}},

 year = {{2024}},

 month = {{1}},

 author = {{Carlton J and Powell P and Peasgood T and Chandler F and Godfrey J and Reuben E}},

 volume = {{27}},

 journal = {{VALUE IN HEALTH}},

 issue = {{12}},

 note = {{Accessed on 2025/05/06}}}